Competition Subaru Proud To Support Paige Keely Foundation

September 30th, 2021 by

The Paige Elizabeth Keely Foundation is a nonprofit 501c3 (EIN-84-5024812) organization that was created in honor of Paige Keely, who passed away at the age of 6, due to a brain arteriovenous malformation (AVM). Early AVM detection can help to change the course of this disease. Competition Subaru is proud to support the Paige Keely Foundation at the Wave of Change Gala on October 6th 2021.

The Paige Keely Foundation

Founder and President Gina Keely created The Paige Elizabeth Keely Foundation in hopes to increase funding for early AVM detection and to raise awareness for AVM’s, educate communities about this treatable condition, and to establish early detection screening programs.

The Foundation is working on opening a Brain Imaging Center here on Long Island. This will open so many doors for early detection of not only Brain AVM’s, and Aneurysms, but will also detect other unknown conditions someone may have. Our imaging center will allow any child or adult, insured or not, to have the ability receive MRA imaging.

What Are Pediatric AVMs?

Arteriovenous Malformations (AVMs) are abnormal tangles of arteries and veins that can occur anywhere in the body. These abnormalities are typically congenital and are present at birth. They usually are not detected unless they cause seizures, weakness, or have ruptured and bled in the brain. Neurologic or life threatening sequelae are associated with each hemorrhage. There is a 4% per year risk of hemorrhage once an AVM has become symptomatic. Treatment is required to reduce that risk and subsequent problems associated with additional hemorrhage. Treatment for AVMs can be quite complex and it is critical that patients with this disorder be managed and surgically treated in a center with extensive AVM experience.

Causes of Arteriovenous Malformation (AVM)

The cause of Arteriovenous Malformation (AVM) is not known. AVMs are thought to be congenital (present at birth), and researchers believe that they may arise from developmental derangements at the embryonic stage of vessel formation (at the fetal stage). However, this theory has never been clearly established, and some researchers believe that AVMs may arise after birth. Unlike the association of head trauma, or other injuries with the development of dural arteriovenous fistulae (DAVF), there are no known environmental risk factors for AVMs.
Most AVMs are termed “sporadic,” which implies that they arise spontaneously without a specific gene mutation being passed on from parent to child. There is no clear familial inheritance, except in families with Hereditary Hemorrhagic Telangiectasia (HHT). HHT patients are at some 10,000 fold higher risk of developing a brain AVM than the non-HHT population.

Importance of Early Detection Screening & Scanning

Identifying and treating Brain Arteriovenous Malformations & Aneurysms before they rupture can and will save lives. If Brain AVM’s & Aneurysms rupture, effective treatment becomes more difficult, and generally a person’s chances of surviving are much lower. Brain AVM’s & Aneurysms that have not ruptured typically have little to no symptoms, until it’s too late.

Wave of Change Gala

The Paige Keely Foundation is hosting their upcoming Wave of Change Gala on October 6th 2021. The purpose of the Gala is to honor Paige, AVM Awareness month and to raise funding for our imaging center. All the proceeds of the Gala will be used to fund two MRA imaging machines.

Help Make A Difference

Please consider making a donation to the Paige Elizabeth Keely Foundation. No family should have to go through the pain of losing a child when early detection could have kept this beautiful 6-year-old child here today. Learn how you can donate and help make a difference here:

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